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Caregivers



My life has taken many rough turns. When I was diagnosed with Multiple Sclerosis, the rough got rougher. I had to learn to deal with life differently. As time went on and my disease progressed, it became clear I needed help. It was time to look into getting a caregiver.

I wanted someone I knew I could trust and someone who would care for me. I chose a close friend. This close friend has been with me now for 3 years, and we have a very special relationship. He is the love of my life, and the one who cares for me day after day. He sees to my personal and medical needs.

I have often said that it takes a special person to come into a relationship with the problems of MS or other health problems. He is special for coming into my life and taking care of me. You see, I am now unable to cook, clean, or do very much for myself. I have to even have help with showers, combing my hair, putting on or tying my shoes, and many other things most people take for granted.

No words can express just how special a person is to become a full-time caregiver. There is a special love in the heart of someone who takes such a job. I know this because I have the best caregiver there ever was. He came into my home when I was at my worst. He is my boyfriend as well. He never gets a day off, and is always there to provide what I need. God only knows what I would do without him.

He is a very special person, and I wanted to make this dedication to him for his never ending care and love. I have no doubt but what is done for me by Kevin is done out of love. His love is never ending, as mine is for him.

You see this massive web site and think there is no way a person could do this who can't even tie her own shoes. Well, what you see is what is completed. You don't see all the breaks I take, and the many times this web site is unattended because I am unable to move, much less, type on a computer. The fact that this web site has gotten as big as it has is a result of my determination to remain useful, and the support of those who visit it. It may take some time, but it always gets done, and the web site gets updated and maintained.

Because I now have a full-time caregiver, I wanted to do a special page devoted to them. One small section of one page for Kevin, did not seem enough. I wanted to let everyone know that all caregivers are special and deserve to be supported in all their efforts.

Besides the help which Kevin provides me, I also receive a great deal of care from my children. This pages is dedicated them as well for their efforts in caring for me. For Kevin to have any breaks or time to himself my children must take over for him to allow this to happen.

Thank you Tim and Rachel. I love you both dearly.

We must never forget those special people who give so freely of their time and efforts to help those who are unable to do things for themselves. There is no honor high enough to reward their efforts.

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A Caregiver's Bill of Rights

(Author unknown)

(Title is linked to the site which provided this information.)

I have the right . . .
* To take care of myself. This is not an act of selfishness. It will give me the capacity to take better care of my relative.
* To seek help from others even though my relative may object. I recognize the limits of my endurance and strength.
* To maintain facets of my own life that do not include the person I care for, just as I would if he or she were healthy. I know that I do everything that I reasonable can for this person, and I have the right to do some things just for myself.
* To get angry, be depressed and express other difficult feelings occasionally.
* To reject any attempt by my relative (either conscious or unconscious) to manipulate me through guilt, anger or depression.
* To receive consideration, affection, forgiveness and acceptance for what I do from my loved one for as long as I offer these qualities in return.
* To take pride in what I am accomplishing and to applaud the courage it has sometimes taken to meet the needs of my relative.
* To protect my individuality and my right to make a life for myself that will sustain me in the time when my relative no longer needs my full-time help.
* To expect and demand that as new strides are made in finding resources to aid physically and mentally impaired older persons in our country, similar strides will be made toward aiding and supporting caregivers.
* To ______________________________________________________________.

Add your own statements of rights to this list. Read the list to yourself every day.

You may visit the National Family Caregiver Support Program for more information and support.

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Support and Information for Caregivers

Caregivers need to find support. Many web sites are available to help, but are mostly geared at those which take care of the elderly. Don't get me wrong this page is for all caregivers, but people need to understand it is not just the elderly who are relying on caregivers these days. Help for caregivers by caregivers Caregiver. They can help give you information to help you cope with the problems related to taking care of someone whether the person is elderly or not.

I know taking care of me is no picnic at times. We tend to get grouchy, cranky, and down right mean to those who help us the most. Our inability to get around and do things for ourselves makes us miserable patients at times. The caregivers get the full range of our frustration directed at them. This and many other problems makes the stress they deal with more then most of us could imagine.

What is Caregiving?

The Six Stages of Caregiving
* Stage 1. I may help a relative soon.
* Stage 2: I am beginning to help.
* Stage 3: I am helping.
* Stage 4: I am still helping!
* Stage 5: My role is changing.
* Stage 6: My caregiving has ended
Taken from Family Caregiving 101.

Please visit the Senior Care Directory by clicking on the link below.
Care.com: Companions, Nurses, and Other In-Home Elder Care Providers

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Especially for Kevin

Kevin is a Native American. He is special and his culture makes him the person I love. We must all respect the culture of the Native Americans, and the wonderful things they have provided for us. His love and support has sustained me for these years with MS.

TRUE LOVE
Author: Anonymous

(Title is linked to the site which provided this Poem.)

Love comes through the eyes
That help me see this wonderful surprise.
I see this wonderful man
Whom of which I can always stand.

Love comes through the ears
That never hear fears.
They help me hear the words from you
And help me pull through.

Love comes through the hands
That make you my man.
Your touch creates chills
Which make me go through many thrills.

Love comes through the mouth
That will one day make you my spouse.
You say the right things at the right time
Which help me keep my state of mind

Love comes through dreams
That make us gleam.
I dream about life with you in it
And everything seems lit.

Love comes through smiles
That extend for miles.
You can see all the joy
That comes from my baby boy.

Love comes through affection
That makes me feel your protection.
I feel safe and secure
And always come back for more.

Love comes through the seasons
That give me plenty of reasons.
Reasons that I Love You
And make us true.

Love comes through the heart
That makes me want to never part.
Your heart is all I need to get by
Without making me cry.

Love comes through me
Which will set you free.
I will give you all my love
That was sent as a gift from above.

Love comes through you
That is always new.
You come up with the sweetest things
And I know we can handle whatever love brings.

Love comes through each one of us
That makes us a must.
I don't think I'd make it without you
And your love so very true.



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Turmoil Leads to Hope was founded on February 1, 2000. Copyright Becky Knouff 2000-2008. This site complies with C.O.P.P.A. standards and rules. Current design by Becky Knouff, becky188@gmail.com. Html coding done by Becky Knouff with the help and support of Tim Colvin at Mightor Industries, Inc. Site can be viewed at 800 by 600 pixels or 1028 by 768 pixels. It works in IE, Firefox, and Netscape browsers.

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